[Sign Up Now] to Receive Our FREE Daily SCVTV-SCVNews Digest by E-Mail

SCVNews.com | Jack’s Angels Foundation Celebrates Knight’s National DIPG Awareness Resolution | 02-16-2017
Inside
Weather
Santa Clarita CA
Partly sunny
Partly sunny
76°F
 
Calendar
Today in
S.C.V. History
April 25
1891 - President Benjamin Harrison stops at Saugus Depot, dines at Tolfree's Saugus Eating House [story]


Jack’s Angels Foundation, a local charitable organization devoted to advocacy and research for DIPG, is celebrating the National DIPG Awareness Resolution introduced by Congressman Steve Knight, R-CA-25, in January in the US House of Representatives, H.Res.69.

Diffuse intrinsic pontine glioma is the second most common pediatric brain tumor and is notoriously the deadliest. The Resolution designates May 17 as National DIPG Awareness Day, and asks that children and mortality rates be of greater consideration for funding in our medical research system. Concurrently, CA State Assemblyman Dante Acosta and CA Senator Scott Wilk are helping Jack’s Angels with a CA State Proclamation for DIPG, part of a national movement to designating May 17 in a proclamation for each state. DIPG has seen no progress in standard treatment protocol nor its terminal prognosis in over 50 years.

Jack’s Angels 2017 Relay for Research includes “Run the Rocks!” on April 30th, 2017 at Vasquez Rocks County Park, featuring 5k and 10k trail races, a kids 1k, and a 20k “Relay for Jack.” The event proceeds support DIPG research, and supports the soon-to-follow National DIPG Awareness Day. Information and registration can be found at www.runtherocks.info. The companion virtual “Relay for Jack” is an option for those unable to attend the April 30th event, or for anyone wanting to support DIPG awareness and research from anywhere around the world. Virtual event registration is at www.curedipg.info, and participation is encouraged on the 17th of each month (action days for www.HRes69.org ) preceding the event, and between May 1 and May 17th.

Janet Demeter, who was inspired by her son Jack (8/30-08 – 7/30/12) to found Jack’s Angels, emphasizes, “Awareness is so important; these families are expected to accept certain death for their children because their lives have little value to the medical research system in place. DIPG is a powerful example of the neglect of pediatric cancer research, even by our own government. These kids and their families deserve acknowledgement, and hope for change.” To learn more about the National DIPG Awareness Resolution (H.Res.69) and Jack’s Angels 2017 Relay for Research, visit www.jacksangels.org.

Comment On This Story
COMMENT POLICY: We welcome comments from individuals and businesses. All comments are moderated. Comments are subject to rejection if they are vulgar, combative, or in poor taste.
REAL NAMES ONLY: All posters must use their real individual or business name. This applies equally to Twitter account holders who use a nickname.

0 Comments

You can be the first one to leave a comment.

Leave a Comment


SCV NONPROFIT LINKS

NONPROFIT HEADLINES
Tuesday, Apr 25, 2017
Bridge to Home, SCV homeless service provider, gave a Humanitarian Award to Yaniv Rokah, Director of the internationally acclaimed documentary movie "Queen Mimi" at the Cowboy Breakfast Fundraiser in Newhall on Saturday.
Monday, Apr 24, 2017
Join HandsOn Santa Clarita for a night of poker, prizes, a silent auction and great food all while supporting this organization on Friday, May 5 at The Paseo Club.
Monday, Apr 24, 2017
The Rotary Club of Santa Clarita and The Newhall Rotary Foundation graciously donated $2,700 to assist with the cost of re-flooring the Val Verde Samuel Dixon Family Health Center.
Friday, Apr 21, 2017
Dedicated to fighting breast cancer through early detection and timely treatments, the Sheila R. Veloz Breast Center (a service of Henry Mayo Newhall Hospital) is offering a special cash price of $225 for digital 3D mammograms during the entire month of May.
Thursday, Apr 20, 2017
The Boys and Girls Club of Santa Clarita Valley is proud to announce the 2017 "Youth of the Year" is Araceli Arreola.

Latest Additions to SCVNews.com
California State University, Northridge will confer honorary doctorates on financial journalist William C. Griffeth and substance-abuse educator Michael Watanabe, president and CEO of Asian American Drug Abuse Program (AADAP).
CSUN Giving Honorary Doctorates to Substance-Abuse Educator, Business News Anchor
Careless motorists as well as riders get special scrutiny as the Los Angeles County Sheriff’s Department aims to improve motorcycle safety.
LASD Looking to Improve Motorcycle Safety
The FDA is warning consumers to beware of products claiming to cure cancer on websites or social media platforms, such as Facebook and Instagram.
FDA Warns Consumers to Beware of Fake Cancer ‘Cures’
The College of the Canyons women’s volleyball program invites boys and girls ages 9-14 to participate in the 2017 COC Volleyball Camp, with two sessions running in July.
COC Athletics to Host 2017 Volleyball Summer Camp
America’s Job Center of California invites residents to connect with new employers, find a new career path or get back into the workforce by attending the Hiring Fest on Friday, April 28, 2017, from 9:00 to 11:00 a.m. at the College of the Canyons University Center, located at 26455 Rockwell Canyon Road.
April 28: Get Hired at the AJCC Hiring Fest
With warmer weather on the way, motorcycle riders will be gearing up and taking to California’s roadways.
CHP, OTS Promoting Motorcycle Safety Throughout May
California Attorney General Xavier Becerra today called out the U.S. Department of Education for abdicating its responsibility to millions of student loan borrowers and their families across the country.
A.G. Becerra Discusses Student Loan Serving Reforms
Senator Scott Wilk, R-Antelope Valley, Monday urged Governor Jerry Brown to reconsider his support of legislation hiking the gas tax and veto Senate Bill 1.
Wilk Urging Governor to Veto Transportation Legislation
The College of the Canyons men’s basketball program invites boys and girls ages 6 to 14 to participate in the 2017 Howard Fisher Cougar Basketball Camp, with two sessions running this summer.
COC Athletic Department to Host 2017 Cougar Basketball Summer Camp
Bridge to Home, SCV homeless service provider, gave a Humanitarian Award to Yaniv Rokah, Director of the internationally acclaimed documentary movie "Queen Mimi" at the Cowboy Breakfast Fundraiser in Newhall on Saturday.
Bridge to Home Gives Humanitarian Award to Film Director
Canyon Country Crime Information and Public Safety Report for the Week of April 10-16, 2017
Crime Blotter: Grand Theft Auto, Aggravated Assault in Canyon Country
1891 - President Benjamin Harrison stops at Saugus Depot, dines at Tolfree's Saugus Eating House [story]
Tonight on SCV NewsBreak, we look back at the 2017 Cowboy Festival. Plus, the first Measure E bonds have been sold. Watch these stories and more on tonight's edition of SCV NewsBreak.
SCV NewsBreak for Monday, April 24, 2017
As part of National Volunteer Week, which runs from April 23 to 29, 2017, the city of Santa Clarita thanks the thousands of volunteers who dedicate their time and energy to the community.
City of Santa Clarita Thanks Volunteers during National Volunteer Week
Join HandsOn Santa Clarita for a night of poker, prizes, a silent auction and great food all while supporting this organization on Friday, May 5 at The Paseo Club.
May 5: Cinco de Mayo Charity Poker Tournament for HandsOn Santa Clarita
Last month (March 2017), Welcome to My Life won an NYICFF (New York Children's Film Festival) Audience Award for children (between 12 and 17 years old).
CalArts Animator Wins NYICFF Audience Award
Laura Zucker announced her plans to leave her position as Executive Director of the Los Angeles County Arts Commission on July 31, 2017.
LA County Arts Commission Exec. Director to Leave Position
The first bonds from Measure E, the Santa Clarita Community College District $230 million general obligation bonds approved by voters in June 2016, were sold on April 12, yielding $50 million to assist in funding a new parking structure at the college’s Valencia campus and two new buildings at its Canyon Country campus.
First Measure E Bonds Sold, Yield $50 Million
Upcoming arts and culture events in the Santa Clarita Valley.
SCV Arts Upcoming Events
Detectives from the Los Angeles County Sheriff’s Department’s Missing Persons Detail are working together with South Pasadena Police Department in seeking the public’s assistance to locate a missing critical child, Andressian, Aramazd Jr.
LASD, SCV Search and Rescue Looking for Missing Boy
As part of National Bike Month, the city of Santa Clarita will host a week of bicycle-focused events and activities leading up to and after the world-class cycling race, Amgen Tour of California, presented by AEG.
City Hosting Free Bike Week Events Leading to Amgen Tour
Agenda for the City Council Committee Development Committee Meeting on April 25 at 4:00 p.m. in the City Hall, Mural Room.
April 25: City Council Development Committee Meeting
The Rotary Club of Santa Clarita and The Newhall Rotary Foundation graciously donated $2,700 to assist with the cost of re-flooring the Val Verde Samuel Dixon Family Health Center.
Rotary Club, Newhall Rotary Foundation Join Efforts to Remodel Val Verde Health Center
Sam Hilliard delivered a game-tying double in the ninth inning, but for the second straight day, the Lake Elsinore Storm won in walk-off fashion, 7-6, in 10 innings on Sunday afternoon at The Diamond.
Jethawks Force Extra Innings, Fall in the 10th
Valencia Crime Information and Public Safety Report for the Week of April 10-16, 2017
Crime Blotter: Grand Theft, Burglary in Valencia
Saugus Crime Information and Public Safety Report for the Week of April 10-16, 2017
Crime Blotter: Assault with a Deadly Weapon, Grand Theft Auto in Saugus
Castaic/ Val Verde Crime Information and Public Safety Report for the Week of April 10-16, 2017
Crime Blotter: Domestic Dispute, Grand Theft Auto in Castaic, Val Verde
1962 - SCV residents vote to connect to State Water Project, creating CLWA [story]
1986 - COC board votes to allow Argentine cliff swallows to nest forever on sides of buildings [story]
1974 - Gov. Ronald Reagan speaks at dedication of COC's first permanent building, the William G. Bonelli Instructional Resource Center [story]
Tonight on SCV NewsBreak, a social media post by a Valencia High School student sparked alarm. Plus, we round-up some great events happening in Santa Clarita this weekend. Watch these stories and more on tonight's edition of SCV NewsBreak.
SCV NewsBreak for Friday, April 21, 2017
The Santa Clarita Public Library has recently named Matthew Hortt as City Librarian. Matthew Hortt will be working with the city of Santa Clarita overseeing programming and operations for the Santa Clarita Public Library’s three branches in Canyon Country, Newhall and Valencia.
Santa Clarita Public Library Welcomes New City Librarian
In an off-market transaction, Colliers International has negotiated the $69.5 million sale of Gateway Village Shopping Center in Santa Clarita.
Valencia L.A. Fitness Shopping Center Sells for $69.5 Mil.
The Master's University is pleased to announce the appointment of Dr. John Stead to the position of Senior Vice President and Provost.
Local Christian University Names USC Alumnus as New Provost
Jilin Bai, MD, PhD, a general practitioner affiliated with the Pacific Alliance Medical Center, has been named a 2017 Top Doctor in Santa Clarita, California.
Santa Clarita Physician Named a 2017 Top Doctor
Toll Brothers, American’s Luxury Home Builder, announces the sales center opening of Toll Brothers at Plum Canyon in Santa Clarita this Saturday, April 22.
Builder Selling New Homes in Plum Canyon