header image

[Sign Up Now] to Receive Our FREE Daily SCVTV-SCVNews Digest by E-Mail

Inside
Weather
Santa Clarita CA
Clear
Clear
69°F
 
Calendar
Today in
S.C.V. History
August 19
2013 - COC breaks ground on Culinary Arts Education building in Valencia [story]
iCue


| Monday, May 13, 2019
Kiran Dong (front and center, with teddy bear) is pictured with (from left): Timothy Zhang (baby); Richard Zhang and Grace Chen (parents); Rodney Zhang (white shirt); PWCF Board Member Senator Scott Wilk; ; and Roger Goatcher, PWCF Board President.
Kiran Dong (front and center, with teddy bear) is pictured with (from left): Timothy Zhang (baby) with his parents Richard and Grace Zhang; Rodney Dong, Kiran's father (white shirt); PWCF Board Member Senator Scott Wilk; and Roger Goatcher, PWCF Board President.

 

SACRAMENTO — The California Senate has unanimously approved Senate Resolution 28, establishing May 2019 as Prader-Willi Syndrome Awareness Month in the state, Senator Scott Wilk, R-Santa Clarita, announced Monday.

“Kiran Dong, an energetic and precocious 8-year-old from Valencia, was selected to light the Capitol Christmas Tree last December,” Wilk said in a statement. “Kiran has Prader-Willi Syndrome. Prior to the tree lighting, I visited him in his classroom at Tesoro Del Valle Elementary School while the students made a gift for Governor Brown. Kiran’s parents and teachers explained the need for increased awareness of Prader-Willi Syndrome if we ever hope to find a cause and/or a cure.

“Fast forward to today, and we are one step closer to making a difference in the lives of the people affected by the disorder,” Wilk said.

Prader-Willi Syndrome, or PWS, is a congenital genetic disorder that affects growth, behavior, metabolism and appetite. PWS leads to weaker muscle and sexual development and a chronic, insatiable feeling of hunger. This often leads to overeating and is the most common genetic cause of morbid obesity.

There are treatments for the effects of PWS, but as of now, there is no known cause and no known cure. While there have been some advances in treating the disorder, plenty of research remains to be done before a cure is found, according to the Prader-Willi California Foundation.

“If we are to make real progress on groundbreaking treatments and an eventual cure, we have to take this first step of raising awareness,” Wilk said. “We really can make a difference in Kiran’s life and the lives of others who are affected by this disorder.”

Comment On This Story
COMMENT POLICY: We welcome comments from individuals and businesses. All comments are moderated. Comments are subject to rejection if they are vulgar, combative, or in poor taste.
REAL NAMES ONLY: All posters must use their real individual or business name. This applies equally to Twitter account holders who use a nickname.

0 Comments

You can be the first one to leave a comment.

Leave a Comment


SCV NewsBreak
LOCAL NEWS HEADLINES
Thursday, Aug 18, 2022
The Cube Hosting Dual Skating Competitions
This weekend, The Cube – Ice and Entertainment Center, Powered by FivePoint | Valencia, is excited to host the United States Figure Skating National Qualifying Series and the ISI Inaugural Open Competition.
Thursday, Aug 18, 2022
Detectives Investigating Brawl Between Man, Teenager
The Santa Clarita Valley Sheriff's Station received a call for service Tuesday at approximately 3 p.m., that reported a male adult, approximately 50 years old, was engaged in a physical altercation with a male juvenile, on the 24000 block of Copper Hill Drive in Valencia.
Thursday, Aug 18, 2022
Logix Hosting Virtual Economic Forecast
Logix Federal Credit Union announced it will host a panel of experts to address developments in our local economy including inflation, employment challenges, global influence, changing trends in home sales and more.
Keep Up With Our Facebook

Latest Additions to SCVNews.com
2013 - COC breaks ground on Culinary Arts Education building in Valencia [story]
iCue
For students considering application for appointment to the U.S. Navy Academy, U.S. Military Academy at West Point, U.S. Air Force Academy, U.S. Coast Guard Academy or U.S. Merchant Marine Academy, an information night will be held Friday, Sept. 9, beginning at 6 p.m.
Sept. 9: Service Academy Appointment Information Night
The Santa Clarita Valley Chamber of Commerce announced Thursday the details of their 4th Annual Healthcare Forum.
Oct. 13: SCV Chamber’s Annual Healthcare Forum
This weekend, The Cube – Ice and Entertainment Center, Powered by FivePoint | Valencia, is excited to host the United States Figure Skating National Qualifying Series and the ISI Inaugural Open Competition.
The Cube Hosting Dual Skating Competitions
California State University, Northridge, and Cal Poly Pomona played to a 1-1 tie in men's soccer exhibition Wednesday at Matador Soccer Field.
Matadors, Cal Poly Pomona End in 1-1 Tie
Dinner and a stroll by the koi pond at The Patios in Valencia can now include a gallery tour and a chance to acquire some incredible works of art at J Sabry Fine Art.
Fine Art Gallery Comes to Valencia Town Center
The ARTree Community Arts Center has announced upcoming classes.
ARTree Announces Upcoming Classes
The Santa Clarita Valley Sheriff's Station received a call for service Tuesday at approximately 3 p.m., that reported a male adult, approximately 50 years old, was engaged in a physical altercation with a male juvenile, on the 24000 block of Copper Hill Drive in Valencia.
Detectives Investigating Brawl Between Man, Teenager
Logix Federal Credit Union announced it will host a panel of experts to address developments in our local economy including inflation, employment challenges, global influence, changing trends in home sales and more.
Logix Hosting Virtual Economic Forecast
Olive Branch Theatricals, a non-profit arts group in the Santa Clarita Valley, has announced a major change in its leadership team. OBT’s founding board members are stepping down from the organization for new pursuits in New York City.
Musette Caing Hart Named President/CEO of Olive Branch Theatricals
1921 - Los Angeles City High School District absorbs Newhall, Saugus and Castaic for grades 9-12. Students attend San Fernando High. (SCV approved for separate high school district in 1945.) [story]
Hart High
The Los Angeles County Department of Public Health confirmed 15 new deaths throughout L.A. County, 4,829 new cases countywide and 123 new cases in the Santa Clarita Valley.
Wednesday COVID Roundup: Santa Clarita Reports 123 New Cases
Santa Clarita is consistently one of the most filmed places in California because it’s located within the industry’s well-known 30-Mile Zone and offers thousands of film-friendly locations that can double for almost anywhere in the world.
SCVEDC: New Extension in Film Tax Credits Is Good News for Santa Clarita
At the Saugus Union School District Board meeting on Aug. 16, 2022, district leadership presented the results from a recent poll related to school safety.
SUSD Releases Results of Recent Safety Poll
The city of Santa Clarita invites the public to a groundbreaking ceremony for the second inclusive play area in the city.
Aug 22: Inclusive Play Area Groundbreaking At West Creek Park
The U.S. Food and Drug Administration issued an Emergency Use Authorization to allow the JYNNEOS vaccine to be given between layers of the skin for people 18 years of age and older at high risk for monkeypox infection.
Monkeypox Roundup: Public Health to Begin Administering Second Doses Of Vaccine
College of the Canyons has announced the appointment of longtime coach and Kinesiology & Physical Education faculty member John Wissmath as head coach of its women’s basketball program, effective immediately.
College of the Canyons Names John Wissmath Women’s Basketball Coach
Back-to-school season can be stressful for many kids and their parents, especially when scammers are back to work with online school shopping scams. 
County Consumer & Business Affairs Warns Of Potential Back-To-School Scams
Caltrans has launched a new push notification feature on its QuickMap app that allows drivers to automatically receive real-time notifications about nearby road closures, emergencies and other traffic updates.  
Caltrans QuickMap Push Notifications Now Available
Get your Stevie Nicks kicks and bell bottoms, and come ready to boogie down on Main Street at That 70s SENSES Block Party on Thursday, August 18 from 7 – 10 p.m.
Aug 18: SENSES Block Party, That 70s SENSES
In tribute to the men and women who have lost their lives as a result of wounds suffered in a war zone while serving in the United States Armed Forces since Sept. 11, 2001, the “Remembering Our Fallen” exhibit is a tribute to California’s nearly 750 fallen.
Sept. 24: Traveling Memorial Honors The Fallen At Valencia Town Center
Child & Family Center offers outpatient and intensive outpatient services for youth and adults who struggle with dependency on drugs or alcohol.
Child & Family Center Offers Drug, Alcohol Treatment
1925 - Newhall School Board announces meeting to determine fate of 3rd consecutive Newhall School at Lyons & Kansas Street (it was cut up and turned into homes) [story]
Newhall School
SCVNews.com
%d bloggers like this: